Update on Preston

When I think I could not love this little guy any more. He does something else that makes me fall in love with him all over again. He is really a blessing to have in our life's and how I wish i could see what he thinks sometimes. He is an amazing little boy and many people would agree with me. Even knows he has special needs it doesn't stop him and it makes us all stronger. I have learned my job as being his mom is helping him do what he is able to and keep pushing him. We have pushed him the last couple of weeks to really wear his cochlear implants. He is doing really good with that now even knows we have to tape the coils on his head. But whatever it takes to help keep them on. He has been jabbering alot the last couple of weeks. Just alot of different sounds and nothing we could really understand. We took the kids to the fair yesterday and while we were in the sheep barn Preston said baa several times after the sheep did. You know you are a parent of a deaf child that is 3 1/2 years old and you get all excited and almost cry in the middle of the sheep barn because your son reacted to the sound and was repeating it. My husband and I just stared at each other in aww. He has been saying mom for a long time and bye at times. But today he actually put the two words together. We were leaving my moms house and he was wanting me to pick him up. So he said bye bye mom mom. I about cried and as I write this I am tearing up. It is so awesome to hear him start saying things and I can't wait until he can do more. He is also pretty much crawling on all fours probably 75 percent of the time. He has a gait trainer ordered so please pray that we get that very soon. I can't wait to see him in and be able to walk somewhat. I know once he gets the hang of it he will be all over. Keep up the good work boo. The babies start preschool in a little under two weeks. Mommy is scared to death but I know they will both benefit from it big time. Oh by the way Madison is potty broke. She wears a pull up at night and that is it.

My sister got married

I have really been slacking in the posting lately. I guess that is a good thing we haven't had to much going on lately. Today my sister Penny got married. Madison and I were both in the wedding and I think it went really good. I am tired tonight but that is nothing unusual. I think the wedding went very nicely and the kids had a good time. So welcome to the family Tom and don't say we didn't warn you. I told you to run when you guys got engaged. Here are some pictures of today. My little girl is getting so big and she is so pretty.

                           My sister Penny, Her husband Tom and their kids

 

                                              My Princess

                                        Madison and Mommy

                                                                                                 

                                           My Family

It has been almost 2 months!

Wow I can't believe that I have not posted in almost 2 months. I just keep putting it off and we have been staying busy. We have been also having some fun. We have been to two zoos since the start of June, we had a surprise party for my Mother in law, Preston has had a Dr appt in Akron, I have baby sat for a friend, I am not working as many hours as I was but seem to not be able to get much done. The Dr's appt in Akron went well. Preston's sleep study came back normal. Except he does move his legs alot when he sleeps but they said that is probably to do with his cerebral palsy. He goes next Monday to get his hips checked out. Preston loves animals right now so we have taken them to the Akron Zoo and the Columbus Zoo. The Akron zoo is really small but it was free through Akron Children's Hospital. The Columbus Zoo we went with my sister Jess and her boyfriends daughter. We all had a blast and the babies loved it. Preston got to sit behind the conductor on a train ride around one part of the zoo. They all also got to ride on the Merry go around. Preston loved it he was so proud of himself and all smiles. My Mother in law turned 60 so we had a surprise party for her a couple of weeks ago. Here are some pictures. I even posted some of me which I hate looking at myself but I have also learned through losing Hayden it doesn't matter how I look I want pictures of me and the kids together. I have just a few of Hayden and I.


Preston, Daddy and I











Preston and Gabe











Madison

2 Years

Today is 2 years since Hayden passed away. 2 years since we last held him. 2 years since we last heard him cry. 2 years ago since I saw his beautiful blue eyes. My heart is breaking right now all over again. Every year I wish this date wouldn't come. I don't want to go to the cemetery anymore to check my son's final resting spot. I want to go into his room and see his sweet face. I want to be able to tuck him in at night or give him a kiss on his sweet lips. I want to see him talking to his daddy at night after his bedtime bottle. I want to see him work so hard to get a toy. I want to hear his first words, see him doing everything for the first time. Even knows we don't know what he would of been able to do because of his CP. As a mommy of a special needs child we would of cherished everything he did for the first time. I still remember him laying in his isolate looking around. I could always count on him being awake when we were in the NICU. I don't think he ever slept. As soon as his eyes opened when he was two weeks old I am not sure they ever closed. He had that look in his eyes that he was wiser then his age. He taught us alot but as time goes it is getting harder to remember the little stuff about him. Or to find someone to talk to him about. I love when people at work let me talk about him usually it is my customers but they are about the only people and that is a very few of them. I am not really able to talk about him at home anymore and that kills me. It is hard to talk about him but at times it is what I need. I carried him in my belly, I gave birth to him, he will probbly be my last child. He was the baby of the group. When I first found out I was pregnant with triplets I wanted all girls. I didn't want boys. I am so happy I had Preston and Hayden it wouldn't of been the same with three girls. Plus Maddie is enough drama for me. I use to tell Hayden all the time that he was my boo boo. It was because I wanted a little girl and I got Preston and Hayden to. So Preston was bo and Hayden was my boo boo. I would call him my boo boo and he would just laugh. Just please keep us in your thoughts and prayers today as we celebrate Hayden's life. He might of been with us only a short time but he has made an everlasting impression on all of our hearts.

Life isn't fair

Why is it that we have to go through so much at times. I am not talking about my family but everyone. It always seems like those that fight lose the most. I have been following another blog for a couple of weeks now. I read this blog daily and it is basically the first thing I read in the morning. It is about this little girl named Kayleigh. She was born premature and was 1lb 1oz. She sadly passed away yesterday. She was 11 months old and never came home from the hospital. Why do these tiny babies have to fight for everything and then end up passing? But her purpose on this earth is done and she is with Jesus now. These stories always hit me very hard. Of course I have been in these parents shoes. I have done the whole NICU thing, I have fought to have babies, I have also lost a child during pregnancy and then of course my sweet Hayden. This week has been a hard one Hayden will be gone 2 years on Friday. I just want to sleep through rest of the week. I wish I could but I can't so I have to suck it up yet once again and get over it. Please visit this families page and pray for them. Their journey through the grieving process has just started. It doesn't ever get better but we learn to deal with it. My normal wasn't what it was two years ago my new normal started the day we lost Hayden. My new normal sucks in some ways and in others I am also reminded how lucky I am to have what I have.

Maddie had eye surgery

At the start of the year I told the kids to surgery's or hospital visits this year. Well guess who didn't listen to that one. If you guess Maddie you are right. She had to have both eyes operated on today. It was suppose to be a couple of weeks ago but didn't happen. As you know around Christmas time her eyes started crossing. She got put in glasses around January and then eye drops in February. Nothing was working so we had to do eye surgery. We even got to visit a new hospital. Her surgery was done at Nationwide's Children's in Columbus. It was a very nice hospital and looks very big. The staff was wonderful with her and us. The surgery went great. She was out of it for awhile and has had nausea on and off all day. They say that is normal because of the eye surgery. Here are some pictures. It looks very nasty and it makes my eyes hurt. When she got home she was wired for about three hours and then she was out cold. She has been wearing sun glasses all evening but that is because she is cute and goofy.

Gabe's 8th Birthday Party

Last night we went to Chuckie cheese to celebrate Gabe's 8th Birthday. We all had a blast. We had several people show up and celebrate with us. Madison has only been there once and Preston hasn't ever been there. I really didn't think he would like it but he loved it. He didn't even eat he was to busy wanting to do the rides and games. It really great seeing Preston do stuff like other kids. Even knows we had to carry him to one thing to another he still had fun. We would make sure we were there with him the whole time in case he lost his balance. But he did awesome I was very proud of him. He sat on the rides like a big kid and kept his balance the whole time. Gabe had a great time also and I am sure he was worn out. Thanks Mike and Jessica helping out with Preston last night. He is a lot of work but makes it eaiser when others are willing to help him.