Still here!!

I didn't realize how long it has been since I have written. We are staying busy. The kids finished their first year of Pre-School. They had a great year and I couldn't be happier on how much they have grown. They are growing up so fast and I love watching them turn into little people. Maddie has grown so much. She talks all the time now and is coming out of her shell a little bit at a time. She loved school and hated to miss it. She would talk about it non stop and always ask about Brody which was a little boy in her class. She had surgery in April for her Tonsils, Adenoids taken out and tubes put in. She did great with it and was back to herself shortly. She also got diagnosed with a very mild case of Cerebral Palsy. It only affects her left side and she has to wear a leg brace now. She is also back in glasses and looks so cute in them. Preston I don't even know where to start. He is an awesome little boy. He is pretty much crawling every where now. It is more like a bunny hop but he gets where he is going. He is starting to says words when he wants to but is also starting to sign a little more. Pam his one on one aide was awesome. This was her first year of working with a special needs child and I was a little scared when we met her last summer. I was scared that she wouldn't be able to handle Preston or how they would work together. They clicked right away and she did more then what we expected. She is what he needed. She always did what we asked and was very good at keeping me informed on what was going on with him daily. I liked that alot since he can't tell me what happened. He has been doing really well but he did just have a 3 night hospital stay this last week. He had a really bad ear infection or something. So he was put on iv antibiotics and steroids through the IV. This was after other antibiotics was not helping and he had some signs of a serious infection. He is doing better now. Gabe is doing great also and just spent 4 nights in Florida with Scott's family. He had a blast. Scott got a new job and it is here in town. It is like 5 minutes down the street if that. He works 3 days one week and 4 days the next 12 hour days. It was hard on us to get use to it but starting to like it better. I haven't changed just taking care of the kids and working as much as I can. Will have to post pictures soon.

March of Dimes

It is that time of year again. Trying to raise money for the March of Dimes. Please help me by sponsoring me for the walk. My babies were born 16 weeks early. I was given less then 10 percent chance of bringing any of them home. I got to bring all three home but sadly lost Hayden when they were 14 months old. But today we celebrate that Preston and Maddie turned 4 today. And honoring our son Hayden. We are remembering him today and all the happy times he brought to us. We miss him very much and think about him all the time. So please help us raise money. Thank you

2009 is over

I didn't get to this post like I wanted to before the end of the year. I would have to say 2009 was pretty boring in alot of ways which is a good thing in this house. Since 2006 we spent a lot of the year in and out of the hospital. 2007 was the worse year of our life's. That is when our son Hayden passed away. That is also when we found out that Preston was pretty much deaf. Or should I say profound to severe hearing loss in both ears. 2008 was a rough year for Preston. It started with a two night stay in the hospital for surgery. He had his tonsils, adnoids, tubes put in, botox done in his legs, MRI or a CAT scan done of his ears. That was a rough couple of weeks while he recovered. In April he had his first cochelar implant done. In November he had his second implant done. He had a lot of appts either in Akron or Cleveland for something. In December he had botox done again and while they were doing the procedure which they drugged him to keep him still he quit breathing twice on us and had to be bagged. We were in the room with him and that brought back all the memorys of when we lost Hayden. He almost had to stay over night to be watched.
2009 was no hospital stays for Preston. Unless you count the one we stayed most of the night for a sleep study. Madison on the other hand had to have surgery. She had surgery on both of her eyes due to the started crossing on us. She also wore glasses for awhile before the surgery. We still had a lot of appts in 2009 for Preston but they have slowed way down. Both kids started Preschool in August of 2009 and both love it. They have done really well with school and they are even in the same class. Madison knows her ABC's, can count if she wants to up to 10, knows most of her colors. She is really starting to talk alot now but it is still hard to understand at times. She still struggles with tripping over her own feet. She has no attention span. She wants to know what is gonig on around her all the time. If she is walking down the hall and someone else is in the hall she runs into the wall. I think she should be a blond.
Preston has come so far. I am very proud of him and praying that this New Year he will continue to improve and get stronger. He is pretty much crawling on all fours most of the time now. Or I should say hopping. He pretty much hops with his back legs when he crawls. It is his bunny hop. He is not talking alot yet which he should be saying what a normal 18 month old says. Since he is at an 18 month hearing age. They go by when his first implant got turned on. We are pretty sure he says some words but they do not happen often. About the only one he says all the time in mom, but he has been saying that before he got implanted. He likes throwing american sign language at us when we are not expecting it. None of us know alot of it since our main goal is to get him to talk. We are waiting for his I-Pod touch. Yes he is three and is getting an I-Pod. They use with him at school during speech therpeay and he does really well with it. This will give him a way to communcaite with us. This will give him more freedom and choices which he wants and hopefully it will help with his fit throwing when we can't figure out what he wants.
Overall I would have to say 2009 wasn't to bad at all. Now let's hope 2010 is just as smooth. Also praying that 2010 brings us a new place to live that would give us more room. Hopefully by end of the year we will at least be expecting a baby but not getting our hopes up. We have been trying again for about two years and nothing. I am not wanting to take meds again. No matter what happens I feel really blessed to have what I have. I have a great husband who is a great dad to my kids. I have an awesome step son who means alot to me but sadly I don't show it enough to him. That is something I have to work on. I have an amazing little boy Preston who teaches me so much everyday. He is an awesome little boy. I have a daughter that I always wanted. She is an amazing little girl that has proved alot of people wrong. She has come such a long way. I was also blessed with Hayden for an amazing 14 months. That wasn't long enough and I would do anything to have him back. But I am very thankful for the 14 months I had with him. He was an amzing little boy and there is not a day that goes by that I do not think of him or miss his smile. Hope that everyone has an amazing year.