Sick Kids!!

The kids are still sick. Scott and I are feeling a little better but the kids aren't doing to great. It has been a snotty full week. Maddie has been running a fever since the weekend, nose is starting to run like crazy and has a little cough. I was letting the illness run it's course but that is hard. Preston is not feeling good at all. He cried yesterday evening for about 2 hours and we could not do anything for him at all. I got him to settle down by laying him in my bed with me and we watched tv. He feel asleep in my arms but when i went to move cause my arm was hurting he woke up. He didn't sleep very good last night. Didn't really scream all night but fussed alot. I am a mean mommy and didn't get him up like I should of. I got the kids up this morning from their cribs and Preston's ear was really nasty. I got to looking at it and could tell it was infected. I called the Doctor's and got them both in. The one time I can not get anyone to go with me to the Dr's. So I took the kids to the doctor by myself. I finally did it and made it. I am wore out now but at least I know I can do it. I do take the kids to other places by myself but a doctors visit can be pretty stressful. Anyway Preston's eardrum busted I guess. The doctor then gave him a shot of antibotics to help clear it up sooner. His ear that is infected big time is his ear that is implanted. Every ear infection scares the crap out of me. He has a device in his head cause of the implant and it dosen't take much to scare me that his device is going to get infected. It is really red behind his ear right now so no implant for a couple of days. I am not going to make him wear it. He hurts you can not touch his ear at all. He is on antibotic now and ear drops. Which are not fun to do. Maddie also has an ear infection but it is just starting so basically her cold turned into an ear infection. Please pray that Preston dosen't get any worse and that it clears up with out hurting him or his implant. If his implant would get an infection he would most likely it will have to be removed.

Update on the kids!!

I said I would post last week after our Akron appointments. I forgot to do it and then got busy. The kids are both sick. If they are not better by tomorrow we might be making a trip to the doctor. The appts on Thursday went really good. Scott gets the idea of having two 2 1/2 year olds at the hospital for about 6 hours. I think he was more tired then the kids. He is an awesome daddy and does his share of stuff around here with the kids but he is just now getting the idea of all the Dr's appointments. The appointments in them selfs can be very stressful and then trying to keep the babies happy is a different stress. He doesn't get to go to many of them because of work but he is going to a few of them. Preston first had a swallow study to see if he still needed his drinks thickened, we haven't been doing it for a couple of months but needed to make sure he didn't need it anymore. He passed and we are good to go now. Then we ate lunch in the cafeteria and went to the other appointments. Madison saw Preston's one doctor for the first time to see if she might have cerebral palsy also. The doctor looked over her NICU records and was shocked on how well Madison is doing. She is watching her and we are increasing her therapy to help her along some. She might have some cerebral palsy but they are not sure that is what it is right now. She is giving us a few concerns so we are going to watch her for the next couple of months and go from there. Madison also weighed in at 23 pounds she is getting big. Preston is weighing in at 26 pounds of course they are sick now and Madison has probably lost weight. Preston is going to have to go through another round of Botox in his legs. I am still waiting on details on that and when it is going to be done. We are afraid that his tightness in his legs is keeping him from doing more. He is doing awesome and we are amazed by him everyday but he isn't doing anything new lately and that has us concerned. At times when you watch him move it is almost like he doesn't know that he has legs at all. So we are hoping that with the Botox that he will be able to move more. We are worried that it hurt him and make him not do as much but it is a chance we have to take right now. We won't know unless we do it. Botox doesn't last long and this might be something he will have to get more often. He had a round of it in January so for us to last until now is good. Here is a couple pictures

Gabe and Madison



Madison looking cute and rotten. Daddy dressed her so she dosen't match but she looks pretty darn cute



Another one of her



Preston and Maddie

Just felt like writing

I have noticed that I have not posted on here in awhile. I guess that could be a good thing. I don't seem to get very many readers on this blog anyway. I wish this could be like the other blogs I read. You know where they are real funny and get the audiences attention and makes you want to come back for more everyday. There are several blogs I read daily and most of them are to get a good laugh at. I love to read how other people's lifes are some of them have multiples and some of them have deaf children. I like to read about them to get another standpoint on what we are going through. Sometimes when you are a parent of a special needs child you feel like you are the only in the world. You feel like you are the only one that is going through what you are going through. Lately I have been feeling like this alot. I feel alone most of the time and no matter how many people I talk to about the kids I still feel alone.
Anyway enough of me whining. The kids are doing really well for the most part. Preston has been really cranky and driving me nuts but he is getting his top two year molars and I think they are about all the way through so he should be good soon. I hope so anyway. Maddie has been Maddie. She is getting pretty poliet and it is funny to hear her say pleassse. She signs it also and gives us this cute little face that mainly gets her what she wants. She is so funny at times. When Preston does something right like playing with a toy or something. She will go yea boo yea!! It is so funny she is his personal cheerleader. Preston is doing pretty good with the hearing. He still isn't much of anything new but we will get there. He goes in the beginning of October to get testing done on his right ear. We are seeing if he is still able to get an implant on that side also. I am not sure what the point of this post was. I guess just so I can ramble on and feel important. We do have an Akron appt tomorrow so I will update when we get home.

Watch this video!!

This video I found on antoher blog that I visit. She has triplets also and one has cerebral palsy. This is amazing to listen to. This was written by an 8th grader who in my mind has more understanding of difference then most of us adults do. She must be an awesome young lady and she will go far.

I like this poem!!!

I asked God . . .

I asked God to take away my pain.

God said, No.

It is not for me to take away, but for you to give it up.

I asked God to make my handicapped child whole.

God said, No.

Her spirit is whole, her body is only temporary.

I aksed God to grant me patience.

God said, No.

Patience is a by-product of tribulations, it isn't granted, it is earned.

I asked God to give me happiness.

God said, No.

I give you blessings, happiness is up to you.

I asked God to spare me pain.

God said, No.

Suffering draws you apart from worldy cares and brings you closer to me.

I asked God to make my spirit grow.

God said, No.

You must grow on your own, but I will prune you to make you fruitful.

I asked for all things that I might enjoy life.

God said, No.

I will give you life so that you may enjoy all things.

I asked God to help me Love others, as much as he loves me.

God said, . . . . Ahhh, finally you have the idea.

Author unknown

Busy but Fun Weekend!!

We had a good weekend for the most part. I am a little stressed out from it all but that is me for you. We went camping at my parents camper for the weekend. And i got the joy of going back and forth from home to the camper to shampoo carpets and couch. That was alot of fun let me tell you. I can't wait to do that again. Friday night we got to the camper in time to make hot dogs and hamburgers on the grill and do a couple of laps around the campgrounds on the golf cart. That is all Preston wanted to do everytime we got off he would throw a fit. I left after dinner and came home to shampoo the couch really good. Saturday morning we went to our local festival to watch the parade. It was hot and we were there about an hour an half early. Wasn't much to do for the little ones and a lot of the food places were not opened yet but we found something to snack on and found a spot to sit at for the parade. The parade was suppose to start at 12:00 not sure what time it finally started but it took forever to get down to where we were and then it was slow. It is a very nice parade but takes a long time. We came back to our house after the parade to put the kids down for a nap and to finish carpets. They took a good nap which they needed and we got all the carpets cleaned. Went back down to the campgrounds and was going to let the kids play in the back yard in their sandbox. We opened it up and the kids went nuts that was until we moved a bucket and underneath was a nest of mice. I didn't want the kids to play in the sand since the mice were in there even if we would of removed them. So we just let them be which made the kids upset. They wanted to play in it so then they got to play on the swingset some but that wasn't much fun. So couple more laps around the campgrouds on the golf cart and started dinner. We had Scott's mom down for dinner and it was nice. The kids had fun and got to eat smores without the choclate but they loved the marshmollows and grahm crackers. Preston would get the marshmollow on his hand and be pulling his fingers apart to watch the stickness. We came home early on Sunday cause we were all beat and the kids haven't had a goodnights sleep. We are still recovering today but it was worth it. Just next time we need to have more things that Preston can do. It was hard watching him not being able to play and have to sit in his chair cause scott and i were trying to get stuff done. It is times like these that it really hits hard on what he can and can't do as of right now. Hopefully by next summer he will be able to walk with a walker or something and can do more.


Madison being cute


I love this smile!!!




Gabe being goofy



Preston and Daddy watching the parade



The float our church entered into the parade. They always have an awesome float every year.



Maddie trying to drive the golf cart. Don't tell Grandpa that she wrecked it into the camper. j/k



This picture was from tonight. Thought it was cute.

It has been busy!

It has been busy around here again. So that is why I haven't posted in so long. Last weekend we went to a birthday party for my nephew which was fun. This weekend we are going camping. Preston is sick with an ear infection. Mommy is losing her mind very soon. It has been a rough week the kids haven't felt good so extra whiny for mommy. Can't do anything to please either one of them.It is only 8:20 in the morning we have been up for twenty minutes and have already gotten into two fights. Preston is cranky which is so not him. I am going send him to Africa until he snaps out of it. He goes in a little bit. Just kidding. I wrote this last week and forgot about it. But here are some pictures from my nephew's party.





Preston and Uncle Fred and yes he has a bat




Madison and Paw Paw